My Texas colleague, Pamela Parker, has written a workbook for parents to help you create a “personal instruction manual for your special needs child.”
As Pamela writes,
the workbook helps parents provide information about their special needs child to future caregivers and trustees. By using the charts and answering the questions in this workbook, parents will know that when they are no longer here to take care of their child, those entrusted with that responsibility will know enough about their child’s unique personality and lifestyle to make informed, consistent decisions for that child. And the parents will also know that their own loving choices and the values important to them will continue to be used in making life decisions for their child.
You can order this booklet by clicking here, and the book is available in print or electronic form.